mrjСовременная ревматологияModern Rheumatology Journal1996-70122310-158XIMA-PRESS, LLC10.14412/1996-7012-2017-4-62-72mrj-797Research ArticleОБЗОРЫREVIEWSЗначение качества жизни, связанного со здоровьем, у больных системной красной волчанкой и современные инструменты его оценкиImportance of health-related quality of life and its current assessment tools in patients with systemic lupus erythematosusВоробьеваЛ. Д.VorobyevaL. D.Evagolland@gmail.comАсееваЕ. А.AseevaE. A.Evagolland@gmail.comФГБНУ «Научно-исследовательский институт ревматологии им. В.А. Насоновой», МоскваРоссияV.A. Nasonova Research Institute of Rheumatology, MoscowRussian Federation2017060120181146272Copyright © Воробьева Л.Д., Асеева Е.А., 20182018Воробьева Л.Д., Асеева Е.А.Vorobyeva L.D., Aseeva E.A.Данная работа распространяется под лицензией Creative Commons Attribution 4.0.This work is licensed under a Creative Commons Attribution 4.0 License.https://mrj.ima-press.net/mrj/article/view/797

Представлен обзор исследований, посвященных оценке качества жизни, связанного со здоровьем (КЖСЗ), у больных системной красной волчанкой (СКВ). Описаны концепция КЖСЗ, а также предпосылки ее создания. Рассмотрена классификация опросников, применяемых у пациентов СКВ, в зависимости от задач, поставленных в исследовании. У больных СКВ на основании многих исследований выведена основная ключевая триада проблем (усталость, боль и депрессия), вызывающая ухудшение КЖСЗ. Приведена краткая сравнительная характеристика восьми специфических опросников для оценки КЖСЗ у больных СКВ: SLE Symptom checklist (SSC), SLEQol, LupusQol, L-Qol, LupusPRO и Lupus Impact Traker (LIT), LUP-QoL, SMILEY. Отдельное внимание уделено оценке КЖСЗ у больных, получающих разные виды лечения: глюкокортикоиды, цитостатическую, анти-В-клеточную терапию.

 

The paper presents an overview of studies assessing health-related quality of life (HRQoL) in patients with systemic lupus erythematosus (SLE). It describes the HRQoL concept and prerequisites for its creation. The classification of questionnaires used in patients with SLE is considered in relation to the study objectives. The main key triad (fatigue, pain, and depression), which causes a reduction in HRQoL in SLE patients, is derived on the basis of many studies. The paper provides brief comparative characteristics of eight specific HRQoL questionnaires in SLE patients: Symptom checklist (SSC), SLEQol, LupusQol, L-QoL, LupusPRO, and Lupus Impact Tracker (LIT), LUP-QoL, and SMILEY. Special attention is paid to HRQoL assessment in patients receiving different treatment options: glucocorticoids, cytostatic and anti-B-cell therapy.

 

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The authors declare that there are no conflicts of interest present.