FUNCTIONAL STATUS AND QUALITY OF LIFE IN ADULT PATIENTS WITH JUVENILE ARTHRITIS DURING THE LONG-TERMCOURSE OF DISEASE
https://doi.org/10.14412/1996-7012-2011-649
Abstract
Objective: to assess the functional status and quality of life of adult patients long suffering from juvenile arthritis (JA).
Subjects and methods. The study included 213 adult patients with JA, the majority (84.5%) of whom had been treated at the Childhood
Department, Research Institute of Rheumatology, Russian Academy of Medical Sciences, in 1968 to 2008 or sought medical advice for the first
time. Ninety-seven of the 213 patients were consulted or examined in the outpatient setting or at the clinic of the Research Institute of Rheumatology, Russian Academy of Medical Sciences. Among the patients enrolled into the study, women were prevalent (72.8%); the patientsmean age was 23.9±6.5 years (range 18 to 60 years); the disease duration was 17.4±6.8 years (range 10 to 53 years). The patients' functional
capacity was determined by O. Steinbrocker's classification (functional class - FC) and HAQ questionnaire. The patients were asked (by
mail, telephone, or personal interview) to fill in the questionnaire, by answering the questions concerning the functional and social status.
Results. A third of the patients had no functional limitations (FC 1), 36% had minimal functional limitations (FC 2); 29% needed help with self-service, and 6.2% were severely disabled. According to the questionnaire survey data, the mean HAQ score was 0.8. Half of the respondents were found
to have no functional limitations (HAQ score was 0). HAQ scores of 0.1-1.0 were observed in 33.5% of the respondents. 6.6% of the patients had the most serious problems with self-service (HAQ scores of 2.1-3.0) HAQ scores correlated with age and disease duration (p<0.001). The health status
was appraised as good or very good, satisfactory, or bad by 43.3, 39.8, and 16.9% of the patients, respectively. There was a correlation between the health status and the HAQ scores (R = 0.6; p<0,001), age (R = 0.3; p<0,001), and JA duration (R = 0.3; p<0.001). At the moment of the study, most (78.9%) patients worked or studied at the moment; 48.2% had a higher education; 6.8% could not study or work because of the disease. A third
of the examinees had families; 46 patients had children, which did not depend on the patients' health status and functional capacity.
Conclusion. Most adult patients, long suffering from JA, have a good prognosis for their functional status and quality of life. At the same time
some patients were observed to have a severer course of the disease and its outcomes with significant functional limitations; in this connection, they need treatment and a continued follow-up.
Subjects and methods. The study included 213 adult patients with JA, the majority (84.5%) of whom had been treated at the Childhood
Department, Research Institute of Rheumatology, Russian Academy of Medical Sciences, in 1968 to 2008 or sought medical advice for the first
time. Ninety-seven of the 213 patients were consulted or examined in the outpatient setting or at the clinic of the Research Institute of Rheumatology, Russian Academy of Medical Sciences. Among the patients enrolled into the study, women were prevalent (72.8%); the patientsmean age was 23.9±6.5 years (range 18 to 60 years); the disease duration was 17.4±6.8 years (range 10 to 53 years). The patients' functional
capacity was determined by O. Steinbrocker's classification (functional class - FC) and HAQ questionnaire. The patients were asked (by
mail, telephone, or personal interview) to fill in the questionnaire, by answering the questions concerning the functional and social status.
Results. A third of the patients had no functional limitations (FC 1), 36% had minimal functional limitations (FC 2); 29% needed help with self-service, and 6.2% were severely disabled. According to the questionnaire survey data, the mean HAQ score was 0.8. Half of the respondents were found
to have no functional limitations (HAQ score was 0). HAQ scores of 0.1-1.0 were observed in 33.5% of the respondents. 6.6% of the patients had the most serious problems with self-service (HAQ scores of 2.1-3.0) HAQ scores correlated with age and disease duration (p<0.001). The health status
was appraised as good or very good, satisfactory, or bad by 43.3, 39.8, and 16.9% of the patients, respectively. There was a correlation between the health status and the HAQ scores (R = 0.6; p<0,001), age (R = 0.3; p<0,001), and JA duration (R = 0.3; p<0.001). At the moment of the study, most (78.9%) patients worked or studied at the moment; 48.2% had a higher education; 6.8% could not study or work because of the disease. A third
of the examinees had families; 46 patients had children, which did not depend on the patients' health status and functional capacity.
Conclusion. Most adult patients, long suffering from JA, have a good prognosis for their functional status and quality of life. At the same time
some patients were observed to have a severer course of the disease and its outcomes with significant functional limitations; in this connection, they need treatment and a continued follow-up.
References
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Review
For citations:
Salugina SO, Salugina SO. FUNCTIONAL STATUS AND QUALITY OF LIFE IN ADULT PATIENTS WITH JUVENILE ARTHRITIS DURING THE LONG-TERMCOURSE OF DISEASE. Sovremennaya Revmatologiya=Modern Rheumatology Journal. 2011;5(1):33-39. (In Russ.) https://doi.org/10.14412/1996-7012-2011-649
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