All-russian registry of rheumatoid arthritis patients: present and future
https://doi.org/10.14412/1996-7012-2014-1-84-86
Abstract
The article describes the All-Russian Registry of Rheumatoid Arthritis (RA) Patients launched in 2011Р2012 as an Internet-based project. The Registry aims at updating the record system of RA patients and providing reliable information on real clinical practice to improve healthcare. The aims, structure, and software of the Registry, as well as its interrelations with other registries, are described. A scheme of the interplay between healthcare facilities and the Russian Association of Rheumatologists during their work with the All-Russian Registry of Rheumatoid Arthritis Patients is proposed.
About the Authors
Dmitry Evgenyevich Karateev
V.A. Nasonova Research Institute of Rheumatology, Russian Academy of Medical Sciences, Moscow, Russia; Kashirskoye shosse 34A, Moscow, 115522 Russia
Russian Federation
Russian Federation
E L Nasonov
V.A. Nasonova Research Institute of Rheumatology, Russian Academy of Medical Sciences, Moscow, Russia; Kashirskoye shosse 34A, Moscow, 115522 Russia
Russian Federation
Russian Federation
A M Satybaldyev
V.A. Nasonova Research Institute of Rheumatology, Russian Academy of Medical Sciences, Moscow, Russia; Kashirskoye shosse 34A, Moscow, 115522 Russia
Russian Federation
Russian Federation
References
1. <div><p>Gliklich RE, Dreyer NA, editors. Registries for Evaluating Patient Outcomes: A User’s Guide. AHRQ Publication No. 07-EHC001-1. Rockville, MD: Agency for Healthcare Research and Quality; 2007. P. 36–8.</p><p>Symmons DP, Silman AJ. The Norfolk Arthritis Register (NOAR). Clin Exp Rheumatol. 2003;21(5 Suppl 31):S94–9.</p><p>Hetland ML, Unkerskov J, Ravn T, et al. Routine database registration of biological therapy increases the reporting of adverse events twentyfold in clinical practice. First results from the Danish Database (DAN-BIO). Scand J Rheumatol. 2005;34(1):40–4. DOI: http://dx.doi.org/10.1080/03009740510017968.</p></div><br />
Review
For citations:
Karateev DE, Nasonov EL, Satybaldyev AM. All-russian registry of rheumatoid arthritis patients: present and future. Sovremennaya Revmatologiya=Modern Rheumatology Journal. 2014;8(1):84-86. (In Russ.) https://doi.org/10.14412/1996-7012-2014-1-84-86
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